Double Mastectomy: My Journey with Breast Cancer Risk

By: Jay Dee, MPH

I Think I Want a Double Mastectomy

No, I’m not being dramatic—hear me out.

A double mastectomy, also known as a bilateral mastectomy, is the surgical removal of both breasts, often performed to treat or prevent breast cancer.

According to the BreastCancer.org, it’s one of the most effective preventive options for individuals at high risk of developing breast cancer.

My Breast Cancer Risk Story

When I was 14, I found my first lump—in Algebra class of all places. Why I was feeling my breast in the middle of 7th period, I honestly couldn’t tell you. But from that moment on, my breasts have been closely monitored with regular ultrasounds.

Fast forward about five years ago, I underwent biopsies on both breasts after two suspicious lumps were found. Thankfully, both came back benign. Still, the unease never fully went away—especially since two of my first cousins have been diagnosed with breast cancer. Because of my family history, I’m now considered high-risk.

BRCA Testing: Knowledge is Power

Recently, my breast oncologist, Dr. Samiian, recommended BRCA genetic testing, a screening that detects mutations in the BRCA1 and BRCA2 genes, which are known to significantly increase the risk of breast and ovarian cancers.

Initially, I was hesitant. If the test came back positive, what options would I really have? There’s no medication that erases genetic risk, and no instant solution.

Still, understanding your genetic makeup allows you to make informed, proactive decisions. In that sense, knowledge truly is power.

Considering a Prophylactic Double Mastectomy

Knowing your BRCA status helps guide preventive care decisions, including the option of a prophylactic double mastectomy. Research shows that this surgery can reduce the risk of developing breast cancer by up to 95% for individuals with a BRCA mutation.

As a result, I’ve begun seriously considering the procedure. Removing breast tissue significantly lowers cancer risk, and breast reconstruction with implants remains an option for many patients.

At this time, my physician has advised against moving forward. However, this is a decision I plan to revisit after having a child (even this has a question mark), when my priorities and options may look different.

Family Reactions and Personal Choice

My mom is going to flip when I finally bring this up. No uterus. No breasts. She might joke that I should’ve been born a boy. But beneath the humor is something deeper—this is my body, my future, and my peace of mind. And those things matter more than anyone else’s comfort.

So I’ll ask you what I’ve been asking myself: Would you take the BRCA test?

In the meantime, I hope you’re staying consistent with your monthly self-breast exams. Black women are often told we have “lumpy” breasts, but if you’re 30 or older and notice a new or unfamiliar lump, don’t brush it off. Listen to your body and call your doctor immediately.

Keep this information in your back pocket. It could save your life.

Until Next Time,

The Vagina Liberator

FAQs Double Mastectomy

Q: What is a double mastectomy?

A: Surgical removal of both breasts to prevent or treat breast cancer.

Q: Who should consider BRCA testing?

A: Individuals with a strong family history of breast or ovarian cancer, or other high-risk factors.

Q: How effective is a prophylactic double mastectomy?

A: It can reduce the risk of breast cancer by up to 95% in BRCA-positive individuals.

Q: Can women get implants after a double mastectomy?

A: Yes, breast reconstruction with implants is an option for many women.

Q: How often should I perform breast self-exams?

A: Monthly, ideally a few days after your period or on a consistent day if post-menopause.